TAKE ACTION!

You have a chance to join with fellow members of the Parkinson’s community to make a difference on a crucial issue – a national registry for Parkinson’s disease. The frustrating truth is that, while we have some estimates, we don’t know how many people are living with Parkinson’s disease. That’s why, together with the Parkinson’s Action Network, we’re writing to urge you to ask your Members of Congress to cosponsor H.R. 1362 and S. 1273, the National MS and Parkinson's Disease Registries Act.

The National MS and Parkinson's Disease Registries Act will establish separate, permanent and coordinated MS and Parkinson's disease national registries at the Agency for Toxic Substance and Disease Registry at the Centers for Disease Control and Prevention. The registries will determine incidence and prevalence of the diseases and lay a foundation for better evaluation and understanding of disease factors, such as geographic clusters of diagnoses, variances in gender ratio, changes in health care practices and changes in disease burden.

It is our hope that the MS and Parkinson’s disease registries will facilitate research that may lead to the discovery of breakthrough treatments and one day a cure for Parkinson's, MS and other neurological diseases. Please join us in this effort by contacting your Members of Congress.

You can help gain support for this important legislation by contacting your Members of Congress and asking them to cosponsor the National MS and Parkinson's Disease Registries Act (H.R. 1362/S.1273).