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Real Talk from Participants
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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • Fox Trial Finder Ambassador Says, “We Have to Advocate for Ourselves”

    Fox Trial Finder Ambassador Says, “We Have to Advocate for Ourselves”

    Susan Mollohan is a very busy Fox Trial Finder Ambassador and Team Fox member, dedicated to speeding a cure to Parkinson’s disease through advocacy and fundraising.
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  • Trial Participation Is Another "Tool in the Arsenal" to a Cure

    Trial Participation Is Another "Tool in the Arsenal" to a Cure

    "It’s OK. Parkinson’s doesn’t have to rule or ruin your life. You can still do what you want to do, but acknowledge, accept it, and participate in these studies. Because every little thing…
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  • A Trial Volunteer's Motivation to Get Involved

    A Trial Volunteer's Motivation to Get Involved

    “I recognize that, somewhere along the line, somebody put themselves out there and participated in trials that I am benefiting from today. That’s just how medical science works."
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  • Fox Trial Finder Ambassador Refuses to Take Her Diagnosis Lying Down

    Fox Trial Finder Ambassador Refuses to Take Her Diagnosis Lying Down

    Jodi Cianci is a Fox Trial Finder Ambassador who is committed to spreading the word about the critical importance of participation in PD clinical trials.
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  • How Trial Participation is Helping Me Define Parkinson's on My Own Terms

    How Trial Participation is Helping Me Define Parkinson's on My Own Terms

    I emailed one of the clinicians, and he called me back right away: They needed recently diagnosed people who hadn't started taking medication yet. Was I interested? Heck yeah.
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  • At 83 Years Old, Trial Participant Says: Help However You Can

    At 83 Years Old, Trial Participant Says: Help However You Can

    In December, Marie Beck's son Thomas attended MJFF's San Francisco Clinical Trials Fair. Less than three months later, Marie is finishing up her third trial that she learned about through…
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  • Stop If You Can't Smell the Roses

    Stop If You Can't Smell the Roses

    “It makes you more knowledgeable. It makes them more knowledgeable. Everyone wins,” says Lynn Kermode of clinical research participation.
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The Parkinson's Progression Markers Initiative is changing how patients, families, doctors and scientists think about brain disease. Now it needs you.

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