Books & Resources

Joel Havemann incorporates relevant scientific information about Parkinson's disease into his own story of living with the condition. "A Life Shaken" includes facts, diagrams and a glossary of information about Parkinson's and presents the information as engaging and accessible.

From an ordinary guy who has done some extraordinary things throughout his life. A baseball National Champion, certified tennis professional, a Boston Marathon runner, and a high school baseball and tennis coach who has brought teams to championships — as well as confronting the biggest challenge in his life. Inspirational, motivational, instructional, and often humorous stories, and the life lessons taken from his experiences. CreateSpace Independent Publishing Platform (May 2015).

This nontechnical, personal guide, written by John M. Vine, covers John's experiences since his Parkinson's diagnosis 12 years ago. It includes advice on all aspects of the disease plus interviews with people with Parkinson's and their partners.

A culmination of over twenty years of personal experience, in A Soft Voice in a Noisy World Karl Robb provides an assortment of tips and suggestions that have made a difference in his life and benefited him in his personal struggle with PD.

Alter Your Course Parkinson's the Early Years is a new book to help you shape your future with Parkinson's. (Paperback 2014)

It has been twenty years since Alan Cohee was diagnosed with Parkinson's disease. He invites you into his life to see how he has faced the journey from his diagnosis.

The American Parkinson Disease Association (APDA) is the largest grassroots network working tirelessly to provide the support, education, and research that will help everyone impacted by Parkinson’s disease live life to the fullest. APDA has a unique nationwide system of Chapters and Information & Referral Centers, delivering education, support, and patient services to Americans with PD each day. Since its founding in 1961, APDA has raised and invested more than $170 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of PD. Learn more at www.apdaparkinson.org.

Diagnosis Dystonia takes readers on a personal and educational journey full of valuable information for the newly diagnosed, as well as for those who have lived with dystonia for years. Tom provides practical information for emotionally adjusting to the diagnosis and subsequent lifestyle changes, offering coping skills, healthy living strategies and treatment options. (Shadow Panther Press, 2015)

The Davis Phinney Foundation was created in 2004 by Olympic medalist and retired professional cyclist, Davis Phinney, to help people with Parkinson’s live well today. As a national leader of quality of life research, the organization’s singular focus is to provide programs and resources that offer inspiration, information and tools that enable people living with Parkinson’s to take action that can immediately improve their quality of life. Through The Victory Summit® event series, Every Victory Counts® manual, Ambassador program and extensive online content, the organization impacts hundreds of thousands of individuals each year. Learn more at www.davisphinneyfoundation.org.

This book chronicles Nan Little's unorthodox approach to managing Parkinson's. Although never considered an athlete, upon hearing her diagnosis in 2008 at age 62, she became physically and mentally stronger by setting, and meeting, unexpected goals.