In this ongoing series, people living with Parkinson’s disease share their passion and how this activity is improving their outlook.

Ellen Maguire

Madison, Connecticut

What’s your passion? A year ago I started working with stained glass, using glass from old windows I’ve salvaged. It brings me such joy to see the light shining through a piece I’ve created and to share it with others. My husband, Mike, built a studio for me — called the Grout Grotto — and I spend 15 to 20 hours in it each week.

How does it help you? I feel lucky to have found my passion. It absolutely improves my quality of life and provides me with such a feeling of accomplishment. As with anything, I’ve learned to organize it to suit my on/off periods — doing the tricky work when I’m on and saving the easier tasks for when I’m not. 

Is this a new pursuit for you? I’ve always enjoyed doing crafts, but had never pursued one art form like this before.

What else helps? I’m part of a small support group, and I’m grateful to have people in my world with PD. But I’m not about to let Parkinson’s stop me from doing the things I love — like gardening, cooking and traveling. Although I’ve never enjoyed exercise, I stay active, eat a healthy diet, and stay up to date on the latest research.

How do you think/able? I don’t give into PD and I’m not concerned with what others think or say. Everyone has something that’s a struggle. Keep pushing yourself and incorporate something into your every day that brings you joy.