You’ve heard that joining a research trial can help contribute to the next breakthrough in Parkinson’s research, but how do you actually participate? How do you pick the right study? How do you balance your life logistics and your medical care considerations? What rights do you have when you participate in a study? In audio from this Third Thursdays Webinar, our panel of people living with Parkinson’s disease (PD) and research experts discuss the practicalities of volunteering for research, including the many benefits of participation for the volunteer and the entire Parkinson’s community.
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In this episode, Maggie Kuhl, vice president of patient engagement at The Michael J. Fox Foundation (MJFF) leads a discussion with panelists:
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Lauren Traub, a registered nurse and MJFF Team Fox member who was diagnosed with PD in 2018.
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Bret Parker, executive director for the New York City Bar Association, who was diagnosed with PD in 2007 and is co-chair of MJFF’s Patient Council.
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Paulina Gonzalez Latapi, MD, a movement disorders specialist and an assistant professor of neurology at Northwestern University Feinberg School of Medicine.
View a transcript of the podcast.
Want to see the slides and other resources from the webinar? Watch on demand.
Learn more about participating in research and download our free guide on our website.
The Foundation’s landmark study, the Parkinson’s Progression Markers Initiative, also known as PPMI, is recruiting volunteers. Join the study that’s changing everything.