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Real Talk from Participants
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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • Fox Trial Finder Ambassador Refuses to Take Her Diagnosis Lying Down

    Fox Trial Finder Ambassador Refuses to Take Her Diagnosis Lying Down

    Jodi Cianci is a Fox Trial Finder Ambassador who is committed to spreading the word about the critical importance of participation in PD clinical trials.
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  • How Trial Participation is Helping Me Define Parkinson's on My Own Terms

    How Trial Participation is Helping Me Define Parkinson's on My Own Terms

    I emailed one of the clinicians, and he called me back right away: They needed recently diagnosed people who hadn't started taking medication yet. Was I interested? Heck yeah.
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  • At 83 Years Old, Trial Participant Says: Help However You Can

    At 83 Years Old, Trial Participant Says: Help However You Can

    In December, Marie Beck's son Thomas attended MJFF's San Francisco Clinical Trials Fair. Less than three months later, Marie is finishing up her third trial that she learned about through…
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  • Stop If You Can't Smell the Roses

    Stop If You Can't Smell the Roses

    “It makes you more knowledgeable. It makes them more knowledgeable. Everyone wins,” says Lynn Kermode of clinical research participation.
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  • This Clinical Trial Participant Isn't One to 'Sit on the Sidelines'

    This Clinical Trial Participant Isn't One to 'Sit on the Sidelines'

    Bryan Toronyi talks about his experience participating in a clinical trial.
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  • Taste the Broccoli

    Taste the Broccoli

    To those who may be interested in clinical research but have concerns, PPMI participant Judy says, “At least go for the initial interview. Don’t say ‘I don’t like broccoli’ if you haven’t tasted it!…
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  • I'm Not Scared of My Genetic Status; I'm Empowered

    I'm Not Scared of My Genetic Status; I'm Empowered

    Jessi Keavney, a guest blogger for FoxFeed, shares her story of finding out her genetic status, and how she took charge after finding out that she has a LRRK2 mutation.
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The Parkinson's Progression Markers Initiative is changing how patients, families, doctors and scientists think about brain disease. Now it needs you.

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