Skip to main content

Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.


  • I'm Not Scared of My Genetic Status; I'm Empowered

    I'm Not Scared of My Genetic Status; I'm Empowered

    Jessi Keavney, a guest blogger for FoxFeed, shares her story of finding out her genetic status, and how she took charge after finding out that she has a LRRK2 mutation.
    Learn more

  • Fox Trial Finder Ambassador Brings Attention to Urgent Need for Trial Volunteers

    Fox Trial Finder Ambassador Brings Attention to Urgent Need for Trial Volunteers

    Gary Rafaloff is a Fox Trial Finder Ambassador who is committed to spreading the word about the critical importance of participation in PD clinical trials.
    Learn more

  • Michael Vanek is Participating in Every Clinical Trial He Possibly Can

    Michael Vanek is Participating in Every Clinical Trial He Possibly Can

    “I will continue doing this until they don't need me anymore,” says Michael Vanek. “It’s an exciting time to have Parkinson’s.” Michael also encourages other patients to participate in PD trials.
    Learn more

  • A Family Affair: The Genetics of Parkinson's Disease

    A Family Affair: The Genetics of Parkinson's Disease

    Guest blogger and MJFF Patient Council member Genia Brin writes about finding out her genetic status and what it means for Parkinson's research.
    Learn more

  • Trial Participation is “Another Way of Contributing to the Cause” Says One Volunteer

    Trial Participation is “Another Way of Contributing to the Cause” Says One Volunteer

    With a background working for a neurologist, participating in clinical trials was an easy call for Gail Brungart. “I felt that’s what I could do,” she said.
    Learn more

  • Parkinson's Patient Linda Klink Finds Her Purpose in Clinical Trial Participation

    Parkinson's Patient Linda Klink Finds Her Purpose in Clinical Trial Participation

    “I said to myself, ‘OK, you have this [disease]. Now what are you going to do about it?’” That's when Linda Klink signed up on Fox Trial Finder to participate in clinical trials.
    Learn more

Close-up portrait

Join the Study that's Changing Everything

The Parkinson's Progression Markers Initiative is changing how patients, families, doctors and scientists think about brain disease. Now it needs you.

Get Started
We use cookies to ensure that you get the best experience. By continuing to use this website, you indicate that you have read our Terms of Service and Privacy Policy.