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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.


  • What to Ask before Enrolling in a Research Study

    What to Ask before Enrolling in a Research Study

    Read sample questions potential clinical trial volunteers should ask a trial team before deciding to enroll in a research study.
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  • A Look from Both Sides at Clinical Research Participation

    A Look from Both Sides at Clinical Research Participation

    Two people living with Parkinson's share their views on clinical trial participation and the personal considerations involved in deciding whether to volunteer for research studies.
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  • Foundation's Study on Parkinson's Genetics Featured on Chicago Morning Broadcast

    Foundation's Study on Parkinson's Genetics Featured on Chicago Morning Broadcast

    This week, Chicago's "You & Me This Morning" show featured Dr. Tatiana Foroud and Jon Gilman to discuss genetic testing for Parkinson's-related genes in the Foundation's…
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  • 16 Reasons to Participate in Parkinson's Clinical Trials

    16 Reasons to Participate in Parkinson's Clinical Trials

    May 4-8 marks 2015's Clinical Trials Awareness Week. Sixteen members of our community told us why participating in research is so crucial to speeding new treatments and a cure.
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  • "Clinical Trials for Parkinson’s Are Saving My Life"

    "Clinical Trials for Parkinson’s Are Saving My Life"

    Foundation friend Bret Parker wrote a poignant blog post for Elsevier Connect about how participating in trials has given him both hope and a sense of control over his health.
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  • Hiroshi Okano's Advice for Getting Involved in Clinical Trials

    Hiroshi Okano's Advice for Getting Involved in Clinical Trials

    For example, before enrolling in BioFIND, Hiroshi had two meetings with the doctor and trial coordinator simply to feel comfortable about participating and to get all of his questions answered.
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Join the Study that's Changing Everything

The Parkinson's Progression Markers Initiative is changing how patients, families, doctors and scientists think about brain disease. Now it needs you.

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