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Real Talk from Patients
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Education & Inspiration

Real Talk from Patients

Members of The Michael J. Fox Foundation community share their experiences with Parkinson's.
  • Fox Trial Finder Ambassador Refuses to Take Her Diagnosis Lying Down

    Fox Trial Finder Ambassador Refuses to Take Her Diagnosis Lying Down

    Jodi Cianci is a Fox Trial Finder Ambassador who is committed to spreading the word about the critical importance of participation in PD clinical trials.
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  • How Trial Participation is Helping Me Define Parkinson's on My Own Terms

    How Trial Participation is Helping Me Define Parkinson's on My Own Terms

    I emailed one of the clinicians, and he called me back right away: They needed recently diagnosed people who hadn't started taking medication yet. Was I interested? Heck yeah.
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  • At 83 Years Old, Trial Participant Says: Help However You Can

    At 83 Years Old, Trial Participant Says: Help However You Can

    In December, Marie Beck's son Thomas attended MJFF's San Francisco Clinical Trials Fair. Less than three months later, Marie is finishing up her third trial that she learned about through…
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  • Stop If You Can't Smell the Roses

    Stop If You Can't Smell the Roses

    “It makes you more knowledgeable. It makes them more knowledgeable. Everyone wins,” says Lynn Kermode of clinical research participation.
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  • This Clinical Trial Participant Isn't One to 'Sit on the Sidelines'

    This Clinical Trial Participant Isn't One to 'Sit on the Sidelines'

    Bryan Toronyi talks about his experience participating in a clinical trial.
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  • Fox Trial Finder Ambassador Brings Attention to Urgent Need for Trial Volunteers

    Fox Trial Finder Ambassador Brings Attention to Urgent Need for Trial Volunteers

    Gary Rafaloff is a Fox Trial Finder Ambassador who is committed to spreading the word about the critical importance of participation in PD clinical trials.
    Learn more
  • A Family Affair: The Genetics of Parkinson's Disease

    A Family Affair: The Genetics of Parkinson's Disease

    Guest blogger and MJFF Patient Council member Genia Brin writes about finding out her genetic status and what it means for Parkinson's research.
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