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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.


  • On CBS Sunday Morning, Michael J. Fox Shares His 20-Year Journey with Parkinson's and Vision for What Comes next in Parkinson's Research

    On CBS Sunday Morning, Michael J. Fox Shares His 20-Year Journey with Parkinson's and Vision for What Comes next in Parkinson's Research

    On the eve of twenty years since he publicly disclosed he has Parkinson's, Michael J. Fox sat down with television journalist Jane Pauley for a special "CBS Sunday Morning" interview.
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  • Patient Data Advancing Parkinson's Disease Biomarker Research

    Patient Data Advancing Parkinson's Disease Biomarker Research

    David Levine, MD, MPH, shares his experiences as a participant in the Levodopa Response Trial and thoughts on PD scientists using his data to advance research.
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  • Bionic Dystonic: A Journey with Brain Surgery

    Bionic Dystonic: A Journey with Brain Surgery

    In honor of Dystonia Awareness Month, a guest blogger shares his journey living with the third most common movement disorder and participating in research.
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  • Innovation and Inspiration: Side Effects of "Outside the Box" Research

    Innovation and Inspiration: Side Effects of "Outside the Box" Research

    The launch of key Parkinson's protein LRRK2 into space inspires a Patient Council member’s actions in pursuit of a cure and his daughter’s curiosity around research.
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  • Participating in Studies Gives One a Sense of Power

    'Participating in Studies Gives One a Sense of Power'

    Sue Lifschiz of Santa Rosa, California was diagnosed with PD in 2002. She joined PPMI to find a biomarker for earlier diagnosis and better disease tracking.
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  • Researching a Better Way to Diagnose Parkinson's Disease

    Researching a Better Way to Diagnose Parkinson's Disease

    Joann, a person living with Parkinson's, shares her experience participating in the Systemic Synuclein Sampling Study (S4).
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Join the Study that's Changing Everything

The Parkinson's Progression Markers Initiative is changing how patients, families, doctors and scientists think about brain disease. Now it needs you.

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