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Real Talk from Participants
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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • Patient Data Advancing Parkinson's Disease Biomarker Research

    Patient Data Advancing Parkinson's Disease Biomarker Research

    David Levine, MD, MPH, shares his experiences as a participant in the Levodopa Response Trial and thoughts on PD scientists using his data to advance research.
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  • Bionic Dystonic: A Journey with Brain Surgery

    Bionic Dystonic: A Journey with Brain Surgery

    In honor of Dystonia Awareness Month, a guest blogger shares his journey living with the third most common movement disorder and participating in research.
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  • Innovation and Inspiration: Side Effects of "Outside the Box" Research

    Innovation and Inspiration: Side Effects of "Outside the Box" Research

    The launch of key Parkinson's protein LRRK2 into space inspires a Patient Council member’s actions in pursuit of a cure and his daughter’s curiosity around research.
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  • Participating in Studies Gives One a Sense of Power

    'Participating in Studies Gives One a Sense of Power'

    Sue Lifschiz of Santa Rosa, California was diagnosed with PD in 2002. She joined PPMI to find a biomarker for earlier diagnosis and better disease tracking.
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  • Researching a Better Way to Diagnose Parkinson's Disease

    Researching a Better Way to Diagnose Parkinson's Disease

    Joann, a person living with Parkinson's, shares her experience participating in the Systemic Synuclein Sampling Study (S4).
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  • Giving Back and Giving Thanks at the Holidays

    Giving Back and Giving Thanks at the Holidays

    After being diagnosed with young-onset Parkinson's disease, Dan Kinel has become a champion for fueling research and has inspired family and his company to do the same.
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  • What to Ask before Enrolling in a Research Study

    What to Ask before Enrolling in a Research Study

    Read sample questions potential clinical trial volunteers should ask a trial team before deciding to enroll in a research study.
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