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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.


  • Don't Be Afraid: Connie Richard's Approach to Participating in Research

    Don't Be Afraid: Connie Richard's Approach to Participating in Research

    “I think you should help others. Let the disease help others. Don’t be afraid. That’s the only way we’re going to beat it,” says Connie Yealdhall Richards, clinical trial participant.
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  • Claudia Revilla: A Fox Trial Finder Fan

    Claudia Revilla: A Fox Trial Finder Fan

    This week, Fox Trial Finder Ambassador Claudia Revilla was interviewed by Benchmark, a new website focused on patients' role in health advances including drug development.
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  • My Experience as a Control in Parkinson's Disease Clinical Trials

    My Experience as a Control in Parkinson's Disease Clinical Trials

    Blogger and life coach Cinda Lawrence shared her experience as a control volunteer (someone without Parkinson's disease) in two clinical trials.
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  • Fox Trial Finder Ambassador Says, “We Have to Advocate for Ourselves”

    Fox Trial Finder Ambassador Says, “We Have to Advocate for Ourselves”

    Susan Mollohan is a very busy Fox Trial Finder Ambassador and Team Fox member, dedicated to speeding a cure to Parkinson’s disease through advocacy and fundraising.
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  • Trial Participation Is Another "Tool in the Arsenal" to a Cure

    Trial Participation Is Another "Tool in the Arsenal" to a Cure

    "It’s OK. Parkinson’s doesn’t have to rule or ruin your life. You can still do what you want to do, but acknowledge, accept it, and participate in these studies. Because every little thing…
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  • A Trial Volunteer's Motivation to Get Involved

    A Trial Volunteer's Motivation to Get Involved

    “I recognize that, somewhere along the line, somebody put themselves out there and participated in trials that I am benefiting from today. That’s just how medical science works."
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Join the Study that's Changing Everything

The Parkinson's Progression Markers Initiative is changing how patients, families, doctors and scientists think about brain disease. Now it needs you.

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